Growing up with a chronically Ill family member—The impact on and support needs of young adult carers: A scoping review (2024)

van der Werf, H. M., Luttik, M. L. A., de Boer, A., Roodbol, P. F., & Paans, W. (2022). Growing up with a chronically Ill family member—The impact on and support needs of young adult carers: A scoping review. International Journal of Environmental Research and Public Health, 19(2), 1-16. Article 855. https://doi.org/10.3390/ijerph19020855

van der Werf, Hinke M. ; Luttik, Marie Louise A. ; de Boer, Alice et al. / Growing up with a chronically Ill family member—The impact on and support needs of young adult carers: A scoping review. In: International Journal of Environmental Research and Public Health. 2022 ; Vol. 19, No. 2. pp. 1-16.

@article{71e91203a33c4429a89b4b0737734d96,

title = "Growing up with a chronically Ill family member—The impact on and support needs of young adult carers: A scoping review",

abstract = "This scoping review provides an overview of the impact of growing up with a chronically ill family member on young adults (18–25 years old), and their specific needs. Young adults represent an important life stage involving a transition to adulthood, during which individuals{\textquoteright} family situations can affect their future. We searched relevant studies following the guideline of Arskey and O{\textquoteright}Mailley{\textquoteright}s methodological framework and the PRISMA statement guidelines for scoping reviews in PubMed, PsychInfo and reference lists to identify articles for inclusion. Studies from 2005 to 2020 were included in this review. Of the 12 studies, six qualitative studies, five quantitative studies and one mixed method study were included. Eight studies discussed the impact, including consequences at a physical and mental level, at their personal development and future perspectives, but also positive effects, such as being capable of organizing their lives. Four studies discussed the needs of young adult carers, including emotional needs, support needs with regard to stimulating autonomy (arising from internal conflicts) and developing their own identity, and the concerned attitude of involved professionals. An unambiguous definition of the target group and further well-designed research are needed to improve clarity about the role of support, so that future professionals can adequately address the needs and wishes of young adults who grow up with an ill family member.",

keywords = "Growing up with care, Impact, Informal care, Needs, Scoping review, Support, Young adult carers",

author = "{van der Werf}, {Hinke M.} and Luttik, {Marie Louise A.} and {de Boer}, Alice and Roodbol, {Petrie F.} and Wolter Paans",

note = "Special Issue: Effects of Parental Physical and Mental Illness on Children and Adolescents. Funding Information: Funding: This study was funded by the University of Applied Sciences of Groningen and the University of Groningen as part of a PhD study. No additional funds have been used. Publisher Copyright: {\textcopyright} 2022 by the authors. Licensee MDPI, Basel, Switzerland.",

year = "2022",

month = jan,

day = "2",

doi = "10.3390/ijerph19020855",

language = "English",

volume = "19",

pages = "1--16",

journal = "International Journal of Environmental Research and Public Health",

issn = "1661-7827",

publisher = "Multidisciplinary Digital Publishing Institute (MDPI)",

number = "2",

}

van der Werf, HM, Luttik, MLA, de Boer, A, Roodbol, PF & Paans, W 2022, 'Growing up with a chronically Ill family member—The impact on and support needs of young adult carers: A scoping review', International Journal of Environmental Research and Public Health, vol. 19, no. 2, 855, pp. 1-16. https://doi.org/10.3390/ijerph19020855

Growing up with a chronically Ill family member—The impact on and support needs of young adult carers: A scoping review. / van der Werf, Hinke M.; Luttik, Marie Louise A.; de Boer, Alice et al.
In: International Journal of Environmental Research and Public Health, Vol. 19, No. 2, 855, 02.01.2022, p. 1-16.

Research output: Contribution to Journal › Review article › Academic › peer-review

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T1 - Growing up with a chronically Ill family member—The impact on and support needs of young adult carers: A scoping review

AU - van der Werf, Hinke M.

AU - Luttik, Marie Louise A.

AU - de Boer, Alice

AU - Roodbol, Petrie F.

AU - Paans, Wolter

N1 - Special Issue: Effects of Parental Physical and Mental Illness on Children and Adolescents.Funding Information:Funding: This study was funded by the University of Applied Sciences of Groningen and the University of Groningen as part of a PhD study. No additional funds have been used.Publisher Copyright:© 2022 by the authors. Licensee MDPI, Basel, Switzerland.

PY - 2022/1/2

Y1 - 2022/1/2

N2 - This scoping review provides an overview of the impact of growing up with a chronically ill family member on young adults (18–25 years old), and their specific needs. Young adults represent an important life stage involving a transition to adulthood, during which individuals’ family situations can affect their future. We searched relevant studies following the guideline of Arskey and O’Mailley’s methodological framework and the PRISMA statement guidelines for scoping reviews in PubMed, PsychInfo and reference lists to identify articles for inclusion. Studies from 2005 to 2020 were included in this review. Of the 12 studies, six qualitative studies, five quantitative studies and one mixed method study were included. Eight studies discussed the impact, including consequences at a physical and mental level, at their personal development and future perspectives, but also positive effects, such as being capable of organizing their lives. Four studies discussed the needs of young adult carers, including emotional needs, support needs with regard to stimulating autonomy (arising from internal conflicts) and developing their own identity, and the concerned attitude of involved professionals. An unambiguous definition of the target group and further well-designed research are needed to improve clarity about the role of support, so that future professionals can adequately address the needs and wishes of young adults who grow up with an ill family member.

AB - This scoping review provides an overview of the impact of growing up with a chronically ill family member on young adults (18–25 years old), and their specific needs. Young adults represent an important life stage involving a transition to adulthood, during which individuals’ family situations can affect their future. We searched relevant studies following the guideline of Arskey and O’Mailley’s methodological framework and the PRISMA statement guidelines for scoping reviews in PubMed, PsychInfo and reference lists to identify articles for inclusion. Studies from 2005 to 2020 were included in this review. Of the 12 studies, six qualitative studies, five quantitative studies and one mixed method study were included. Eight studies discussed the impact, including consequences at a physical and mental level, at their personal development and future perspectives, but also positive effects, such as being capable of organizing their lives. Four studies discussed the needs of young adult carers, including emotional needs, support needs with regard to stimulating autonomy (arising from internal conflicts) and developing their own identity, and the concerned attitude of involved professionals. An unambiguous definition of the target group and further well-designed research are needed to improve clarity about the role of support, so that future professionals can adequately address the needs and wishes of young adults who grow up with an ill family member.

KW - Growing up with care

KW - Impact

KW - Informal care

KW - Needs

KW - Scoping review

KW - Support

KW - Young adult carers

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U2 - 10.3390/ijerph19020855

DO - 10.3390/ijerph19020855

M3 - Review article

AN - SCOPUS:85122876507

SN - 1661-7827

VL - 19

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EP - 16

JO - International Journal of Environmental Research and Public Health

JF - International Journal of Environmental Research and Public Health

IS - 2

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van der Werf HM, Luttik MLA, de Boer A, Roodbol PF, Paans W. Growing up with a chronically Ill family member—The impact on and support needs of young adult carers: A scoping review. International Journal of Environmental Research and Public Health. 2022 Jan 2;19(2):1-16. 855. doi: 10.3390/ijerph19020855